I Retired From Who I Was Because of Chronic Pain

I retired from being me

At the beginning of the pain, I was just trying to get through each day. I went from doctor to doctor trying to figure out what was wrong with me while still living, working, volunteering, partnering, laughing and doing activities of daily life.

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Comparison and Chronic Pain

“How is your body these days?” I asked a good friend.

“I know it’s nothing compared to what you’re going through, but,” she said.

My Pain is Nothing Compared to Yours

Argggghhhhhh. I am so sick of hearing “it’s nothing compared to your pain” when all I want to know is how a loved one is truly doing.

I get frustrated when I know they are withholding because they think their pain is nothing when equated to mine. Stop comparing! Pain is pain. And you get to have yours.


I would tell all of the deep relationships in my life that my pain does not stand in the way of who we are. Our relationships. Stop tiptoeing around who you are. It stands in the way of our deep intimacy.

Come back to who we were and we will navigate this permanent and incurable disease of mine.

I Miss All of You

I miss you and the wholeness of you. I miss your stories. Your aches and pains. I want to hear all about you without your withholding. This causes an ache in my heart that some of what we had is lost.

The Benefits of Chronic Pain

Note that it is probably too soon to see the advantages if you have just been diagnosed with chronic pain. Trust me. I live with a number of persistent pain diseases. There will come a time when you can’t help but reflect on the changes you have made.

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Pain Does Not Equal Harm

Pain does not equal harm. What? I admit that this was one of the hardest things for me to understand. How can that be? But I have nerves that are spasming. How is this not damaging them? Are you sure they are not getting torn each time this happens? No?

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Gratitude Heals Chronic Pain

I did not say, “Cures Chronic Pain.” I have permanent incurable diseases however; I am healed more every day by the actions I take.

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Trigeminal Neuralgia and Chronic Pain

A quick blog today.

My video of my TN story posted today on the US Pain Foundation’s site. Click here to view the video.

Please know that there are many organizations putting research dollars into your chronic pain disease and offering helpful ideas on how to thrive in your daily life.

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Sites Talking About Pain Awareness Month

In honor of attention being focused on those who live with chronic pain, I thought I would make a quick list of sites that are concentrating on helping you improve your life!

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September is National Pain Awareness Month

You don’t have to do much searching on the Internet to find good pain resources for most diseases. Leaving the comfort of your home to find credible information and support is difficult if you are in the midst pain flares. What a gift to have this access at your fingertips.

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Distraction and Chronic Pain

I read somewhere that “Distraction is the most powerful analgesic of all.” I cannot find who said it, but I want to give thanks to this idea.

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Hearing “You Manifested Your Illness” Causes More Pain

I have heard the following clichés during my years with chronic illnesses:

You attracted this for a reason. Think positive. Think happy thoughts. God never gives you more than you can handle. When one door closes another one opens. Your pain can be a blessing if you look at it from the right perspective.

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