I retired from being me
At the beginning of the pain, I was just trying to get through each day. I went from doctor to doctor trying to figure out what was wrong with me while still living, working, volunteering, partnering, laughing and doing activities of daily life.Read More
“How is your body these days?” I asked a good friend.
“I know it’s nothing compared to what you’re going through, but,” she said.
My Pain is Nothing Compared to Yours
Argggghhhhhh. I am so sick of hearing “it’s nothing compared to your pain” when all I want to know is how a loved one is truly doing.
I get frustrated when I know they are withholding because they think their pain is nothing when equated to mine. Stop comparing! Pain is pain. And you get to have yours.
I would tell all of the deep relationships in my life that my pain does not stand in the way of who we are. Our relationships. Stop tiptoeing around who you are. It stands in the way of our deep intimacy.
Come back to who we were and we will navigate this permanent and incurable disease of mine.
I Miss All of You
I miss you and the wholeness of you. I miss your stories. Your aches and pains. I want to hear all about you without your withholding. This causes an ache in my heart that some of what we had is lost.
You don’t have to do much searching on the Internet to find good pain resources for most diseases. Leaving the comfort of your home to find credible information and support is difficult if you are in the midst pain flares. What a gift to have this access at your fingertips.Read More
I have heard the following clichés during my years with chronic illnesses:
You attracted this for a reason. Think positive. Think happy thoughts. God never gives you more than you can handle. When one door closes another one opens. Your pain can be a blessing if you look at it from the right perspective.Read More